Tuesday May 26th

FBG 88

10 sit ups, push ups, deadlifts, squats

Breakfast – 1/4 can salmon, hard boiled eggs, mayo, celery

morning – 1 oz Almonds, with little olive oil & spices (toasted) homemade hot cocoa with coconut oil, pumpkin seeds

lunch – left over salmon salad, 1/3 avocado

afternoon 1 oz Almonds

dinner – chicken wings, cucumber

Macros  Fat 135, protein 43, carb 40, fiber 15

ketones 1.2  glucose 96  I need to eat less Almonds and less hot cocoa.

I had appointment with oncologist. My kappa free light chains remain the same (25.7mg/L- slightly above normal) and my ratio is 1.03. My kidneys are still showing much healing with Creatinine 1.22 and Creatinine clearance 46% and BUN 28. I started my conversation tactfully with:” Optum Rx Pharmacy called to arrange delivery of my Revlimid but I told them I wanted to talk to you first.” I went on to explain that I would like to take no Revlimid the next 8 weeks and just do my ketogenic diet and take Curcumin. We discussed it for 10-15 min. Here were his arguments – which were mostly focused against the Curcumin: He said, “I believe in capitalism and if the pharmaceutical companies found that these substances were really effective, they would add a hydrogen atom or purify it and patent it.”. He said many chemo drugs are natural substances that have been slightly modified. He went on to describe a neighbor who has an 8 yr old son with leukemia and how he and his wife were invited to dinner – really invited so they could be asked about a concoction of herbs. My doctor said that he went and looked the substances up and there were 10 studies – 8 were in test tubes and he threw those out. Of the remaining 2, one showed no effect and the other showed some problems with other organs. He said you need to look at clinical studies involving people, not test tube experiments.

I said that my diet has been very effective and I take a fasting blood glucose reading every morning and take a ketone and glucose reading every evening. I eat very low carb, fairly low protein, and fairly high fat. He wondered what my lipid profile looks like. I said my Nephrologist has me scheduled for full lipid profile at end of summer, but if I have to worry about either cancer or lipids, I am more concerned about cancer. He nodded.

I told him about Thomas Seyfried’s book and he must have been familiar with it because he mentioned brain cancer. He also said that Metformin is being used to lower blood glucose in cancer patients. His last argument was that when I start back on a drug, it will take a couple of months to see the effect. But he said I have been a good patient for 3 years, have been on Revlimid over 2 years and he agreed. So, I will continue to follow ketogenic diet and no chemo drugs next 8 weeks. update – after thinking about conversation with my oncologist, I decided to continue with low dose Revlamid as long as it is working.

So, my goal for the next 8 weeks is:

Work really hard to keep ketones above 3 and glucose below 90.  Added Coenzyme Q10 on 5/27/15.  I am taking 3 Curcumin with bioperine and 3 Curcumin without and 3 omega 3 capsules together first thing in morning.  I also got Centrum multivitamin & mineral +50 that I take.  All of this is the same, but I am also going to continue with my chemo pill.